Hi, my name is Quinn and I have vulvodynia and pudendal neuralgia. (Sounds like an AA meeting)
As I've become more active in the online vulvodynia community, I've felt compelled to use my name and not an alias. This is who I am, this is what I live with and I shouldn't be ashamed.
I made the decision to use an alias because I thought my family would be embarassed if they knew I was sharing the woes of my cha cha with the entire world. Over the last year, I've become more open with my family. They all know what's going on down there and a number of family member have read my blog.
I think reading my blog has helped them understand me and what I've been through. The first 4 years were rough both physically and emotionally, but I couldn't talk to anyone about it because I was so ashamed. I didn't think anyone could understand. I thought I was completely alone.
I have a completely different life now. I'm well both physically and emotionally for the first time. The last real demon clouding my mind, annorexia, is in a state heibernation. I'm fortunate to have the love and support of my family.
My mom frequently asks me, "how's your part?" She hates the word vulvodynia because it sounds like vulva, but she like the name pudendal neuralgia, although, she can never remember it. Baby steps, right?
Also known as painful intercourse syndrome, vulvodynia is an often-oversimplified diagnosis for a very complicated and debilitating syndrome. Pudendal neuralgia is inflammation of the pudendal nerve. This condition causes burning or stabbing pain in the genitals, urethra or anus. The pain often gets worse over the course of a day and is exacerbated by sitting. Both conditions make sex incredibly painful. Sex should not cause you persistent pain. It can get better. You’re not alone.
Showing posts with label support. Show all posts
Showing posts with label support. Show all posts
October 6, 2008
I'm Officially Coming Out of the Blogger Closet...
Labels: vulvodynia
pudendal neuralgia,
support,
vulvodynia,
vulvodynia blog
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