Thank You

I want to thank all the brave and wonderful ladies who participated in the online vulvodynia support group meeting last night. Thank you for sharing your experiences and your advice.

It is a great comfort to know that I'm not alone and there are other women out there who understand.

If you missed the meeting last night, you can check out the transcript in the chat box.

Thank you again, ladies.

Reminder: Online Support Group Meeting Tonight at 8:00 EST

Come interact with fellow patients living with vulvodynia, pudendal neuralgia, vulvar vestibulitis, IC and other chronic pelvic pain conditions.

Rules of Etiquette

1. Please be respectful of everyone in the group. We are not competing for who has it worse. We're all in the same boat, and we all know how difficult it can be.

2. Please remember this is intended to create a positive environment, so please keep your negativity in check. I know this can be a challenge given the subject, but it is necessary for the success of the group.

Here's How It Will Work:

-The chat will be held in the left sidebar on this page.

-Log in to participate by giving a username and a password.

-A topic will be introduced and then everyone will be invited to share her experience.

-The meeting will last one hour

Online Support Group Meeting Tuesday March 24th

I've had a lot of interest in the Online Vulvodynia and Pudendal Neuralgia Support Group, so I've scheduled a meeting for Tuesday March 24th at 8:00 pm EST. I hope you'll join me and other women who are in your shoes.

Invitation to Participate in a Vulvodynia Research Study

Invitation to Participate in "Exploring the use of online support groups among women with vulvodynia" Research

This is an invitation to participate in undergraduate research conducted by Ms Kate Flynn, under the supervision of Dr. Rebecca Knibb at the University of Derby.

Participation involves an interview of up to thirty minutes. This can be conducted via live chat facilities. The interview covers such areas as your experience of vulvodynia, your reasons for seeking out online resources relating to vulvodynia, and the benefits and disadvantages you have experienced while using them.

Participation in the study is completely voluntary and is open to all women aged 18 or over. Your answers will be quoted as part of an undergraduate research project, however the researcher will not use your real name, thereby assuring the information you provide will remain anonymous. You can withdraw from the study at any time.

If you would like to ask any questions regarding the study or express an interest in participating, please contact the researcher using the details below.

Thank you for your time.

Kate Flynn

k.e.r.flynn1@student.derby.ac.uk

Reminder: Vulvodynia Online Support Group Meeting Tonight

Tonight at 8:00 EST, I will be hosting the first Life with Vulvodynia Online Support Group Meeting.  

Mission

 

The mission of the Life with Vulvodynia Online Support Group is to offer women the opportunity to discuss their condition with fellow patients in a non-threatening environment.  This support group is designed to encourage Hope, Education & Communication.

Rules of Etiquette

1. Please be respectful of everyone in the group.  We are not competing for who has it worse.  We're all in the same boat, and we know how difficult it can be.

2. Please remember this is intended to create a positive environment, so please keep your negativity in check.  I know this can be a challenge given the subject, but it is necessary for the success of the group.

Here's How It Will Work:

-The chat will be held in the left sidebar on this page.

-Log in to participate by giving a username and a password.

-A topic will be introduced and then everyone will be invited to share her insights.  If you don't have a comment, you can say, "Pass."

-Only after everyone has spoken will the floor be opened to discussion.  

-There will be a limited time for each topic

-The meeting will last one hour