tag:blogger.com,1999:blog-1224048210099394639.post4814902778166828678..comments2023-10-21T08:08:55.191-04:00Comments on Life with Vulvodynia & Pudendal Neuralgia: Faced with a DecisionQuinnhttp://www.blogger.com/profile/11788208540404581979noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-1224048210099394639.post-28236328255179755062008-01-24T10:38:00.000-05:002008-01-24T10:38:00.000-05:00celesteUNDERSCORElippATyahooDOTcomI couldn't find ...celesteUNDERSCORElippATyahooDOTcom<BR/><BR/>I couldn't find your email contact here so you send me one and we can talk.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1224048210099394639.post-79527980428756951612008-01-23T12:32:00.000-05:002008-01-23T12:32:00.000-05:00Hi Celeste,Thank you so much for replying. I woul...Hi Celeste,<BR/><BR/>Thank you so much for replying. I would really like to learn more about your experience with surgery. I haven't spoke to any women who have actually gone through either. <BR/><BR/>Would you be willing to email me so we can continue this discussion?<BR/><BR/>I would really appreciate your guidance. <BR/><BR/>Thank you.Quinnhttps://www.blogger.com/profile/11788208540404581979noreply@blogger.comtag:blogger.com,1999:blog-1224048210099394639.post-58513378819010958612008-01-23T11:14:00.000-05:002008-01-23T11:14:00.000-05:00I wasn't bashing your doctor. I was just saying t...I wasn't bashing your doctor. I was just saying that one or both of you is misinformed. In any case, most people who have PN decompression surgery get referred to somebody who does it all the time, which is probably a good thing. I do know that any surgery on the external genitalia involves a lengthy and painful recovery time. I had both this and PNE decompression and the PNE surgery was a breeze in comparison. My external surgery was to repair childbirth damage. I do encourage you to learn all you can because you might be somebody who needs both as well.<BR/><BR/>There is a lot of information to be found online and a lot of support, too. <BR/><BR/>Best of luck to you.<BR/>CelesteAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1224048210099394639.post-74122456969111703482008-01-22T15:39:00.000-05:002008-01-22T15:39:00.000-05:00Thank you for the link. I obviously have a lot to...Thank you for the link. I obviously have a lot to learn about this procedure. <BR/><BR/>At this point, my doctor and I have not had a consultation on the pudendal nerve decompression surgery. It has only been discussed briefly as a treatment option that may be beneficial. <BR/><BR/>My understanding based on these conversations is extremely limited. This in no way reflects the knowledge or abilities of my physician. <BR/><BR/>You're right that the decision is mine, but I have a lot of faith in my doctor. He hasn't let me down yet, when so many others have. Together, I think, we will determine the best course of treatment possible.Quinnhttps://www.blogger.com/profile/11788208540404581979noreply@blogger.comtag:blogger.com,1999:blog-1224048210099394639.post-14335733518502898132008-01-22T14:38:00.000-05:002008-01-22T14:38:00.000-05:00There is no way that you and/or your doctor are un...There is no way that you and/or your doctor are understanding pudendal nerve decompression surgery correctly.<BR/><BR/>The pudendal nerve is not severed in decompression surgery. It is a mixed nerve--it carries feeling and controls function.<BR/><BR/>Vestibulectomy involves cutting off of external tissue and then pulling vaginal tissues down to cover the hole that has been created. You should talk to some women who have actually had this surgery before you commit to it, so you can understand more about the recovery and success rates.<BR/><BR/>You decide what surgery you will or will not have. Right now it sounds as if your doctor is making all of those decisions. I hope you will gather all of the information that you can.<BR/><BR/>You should look at www.tipna.org for more information.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1224048210099394639.post-63457590006780332642008-01-15T21:23:00.000-05:002008-01-15T21:23:00.000-05:00I just found your blog and I really like it. I ha...I just found your blog and I really like it. I have also been diagnosed with vulvodynia. I am starting physical therapy currently for pelvic floor dysfunction and the hope is that it will help some of the symptoms. <BR/><BR/>I also have a blog about my struggles with IC, Vulvodynia, PFD, PCOS and insulin resistance. If you don't mind I'm going to list your blog on mine. Feel free to list mine as well. I feel like some of the best medicine is a good community. :)<BR/><BR/>http://bodychronic.blogspot.com/Kimhttps://www.blogger.com/profile/10793976372669381167noreply@blogger.com